The most helpful thing I did was to join the Scoliosis Association UK. There is a wealth of information on their website:
and the team there are incredibly kind, knowledgeable and helpful. There is a forum on the website that members can access and it is a great way to share information, ideas and experiences. They cover the whole spectrum of Scoliosis from Infant through Adolescent Idiopathic Scoliosis (AIS) and Adult. You can quickly make friends with those who have a similar situation to you.
Another great source of information and new research is the Scoliosis Research Society which funds and supports research info spinal deformities:
You may also be interested to look at the British Scoliosis Society which represents surgeons, healthcare workers and researchers interested in the nature of and treatment of scoliosis and complex spine disorders.
Another one to watch is the British Scoliosis Research Foundation (BSRF) which is the only charity that exists solely to promote research into the treatment of spinal deformities in the UK.
Finally, there is the SOSORT website. SOSORT stands for Society of Scoliosis Orthopaedic and Rehabilitation Treatment and basically is a international body of scoliosis experts who engage in all forms of treatment except for surgery……which they recognize as an relatively unwarranted and unnecessary procedure for AIS! There is a mass of great information on this website from blogs explaining Scoliosis, to articles on diet/nutrition and exercise therapy.
The main website is: www.sosort.mobi
There is also a website on their 2014 annual conference: www.sosort2014.com
This is where you will find details on the conference programme which in 2014 may include a visit from the Katharina Schroth Clinic in Germany. I am particularly interested in this as we are currently working with a Schroth trained Physiotherapist!
I also found the following books really helpful when I was first trying to understand Scoliosis and, importantly, trying to find out what might help to control the curve progression.
Curves, Twists and Bends: A Practical Guide to Pilates for Scoliosis
By Alan Hardman and Annette Wellings
Your Plan for Natural Scoliosis Prevention and Treatment
By Dr. Kevin Lau