I had never heard of Scoliosis when the physio first mentioned it.  We had gone to see her because my youngest son, then aged 12, had complained of some pain in his right shoulder.   I had looked at his back and been surprised by the strange shape it was in and naively thought a few sessions with the physio would sort it out.  How wrong was I?

Our physio was very kind and explained to both of us that she could help with some exercises to improve his shoulder position and reduce the pain, but that we should make an appointment to see our GP and be referred to a consultant orthopaedic surgeon for a full diagnosis.  With my heart in my mouth and tears threatening to burst forth I smiled at Chris and said “let’s focus on the shoulder exercises today and then we’ll make an appointment to see our GP”.

While Chris focused on the exercises I tuned out completely, my mind flying in all directions as I tried to process the bombshell that my gorgeous boy had a major spinal problem that required us to see a surgeon…for a condition that I’d never even heard of.

Well that was the start of our Scoliosis journey and it has been a roller coaster of ups and down ever since.  The GP was kind and efficient, asking Chris to do a forward bend to assess his spine and quickly confirming that he did indeed have Scoliosis and that we should be referred to an orthopaedic surgeon.  We are fortunate to have private health insurance and I opted to use this so that we would be seen quickly.  Within a week we were in the consultant’s waiting room.

In the days in-between I started to google Scoliosis and honestly scared myself stupid.  The majority of material I found pointed to a seemingly inevitable end situation where spinal surgery was the only solution.  I hoped the consultant would offer a more positive point of view…I was wrong.

He gave Chris a physical assessment and then we were sent to the x-ray department.  After an hour and a half of waiting it was finally his turn.  I offered to go in with him, but being the brave soul that he is he said he’d be fine and off he went, a slim little boy in a large green x-ray robe.   Once the x-rays were done and he was dressed again we returned to the waiting room.  Then we were called back in to see the consultant.

He had the x-rays up on his screen and then used a software programme to calculate the degree of curvature.  “He has a 20 degree curve, nothing severe at present but it may progress further.  If it does get to 40-45 degrees we would consider surgery.  We’ll monitor him closely and I’ll see him every 4 months for a review and x-ray.”

My first and instinctive question was, “How do we prevent it from progressing?  This was quickly followed by a whole load more questions about different therapies I had read about on the internet.  His response was brief, negative and once again ripped my heart apart.  “Some people try bracing and physios but nothing really makes any difference – we’ll just wait and see.”

WOW…I didn’t know three little words could piss me off so much! What use is wait and see to my son.  At 12 years old he has another 6+ years of growing still to do – are we expected to just sit around and wait for the curve to progress over the next 6 years?  NO WAY was I going to do that.  An instinctive and deep seated sense of good manners prevented me from shouting at this man and I also didn’t want to upset Chris, so I simply said “Thank you” and we left.